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I want to change my name as it appears in the blogs.
Its now Garybjordan and I want it to be a nickname instead.
I have gone to the profile area and cannot see where to change it.
If you could change it for me....I would prefer Garo.
Let me know.
  • Posted Mon 30 Jan 2017 08:51 AM CST
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Hi Garo,

​I sent you a message that this has been done, but I just wanted to make sure you saw it!
Thank you!
Kristen, AHA
  • Posted Tue 07 Feb 2017 11:21 AM CST
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im 30 years.
i have Af rytm once at last september. but i didint have good filling. every time i am disturb about my heart(maby in risk or no). every time i toch my chess and disturb. please help me.
  • Posted Tue 10 Jan 2017 04:27 AM CST
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Hi Schooli_1987. I would definitely talk to your doctor about this so that they can diagnose you and put you on the appropriate treatment. Thank you for reaching out. Here is some more information for people recently diagnosed with AFib that may be helpful information in addition to your conversation with your doctor. http://myafibexperience.org/newly-diagnosed
  • Posted Tue 10 Jan 2017 09:07 AM CST
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hi Kristian
I have question.
can i have drink(wine or beer)- i have af rytm once in last septembr
  • Posted Sun 01 Jan 2017 02:53 PM CST
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Thank you for posting and welcome to the community. This is a question that you should ask your doctor as everyone is different!
Thank you!!
  • Posted Tue 03 Jan 2017 10:13 AM CST
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Hi Kristen
I have a question: My mom has A Fib and I'm starting to be bothered with this. She typically gets this in the morning while lying in bed, and her heart rate starts beating so fast and irregularly, and it tires her out for the rest of the day and even the next day.
Is there anything that she can do to help this, as it happens mostly in the morning .... Before any coffee / food, etc.
  • Posted Tue 13 Dec 2016 11:36 AM CST
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Hi Aaron, Thank you for so much for reaching out. I am sure you had already done this, but if not, I would talk to her cardiologist about this and see what he/she would recommend to reduce her symptoms in the morning. However, feel free to post this comment in the community forum where others can share with you what they have done to manage their AFib and reduce symptoms. Please let me know if you need any help with this.

On this website, we have some information that may be helpful to you after you talk with her cardiologist about treatment options. You may want to check out these pages: http://myafibexperience.org/healthcare-office/medications and http://myafibexperience.org/healthcare-office/treatment

Thank you again for reaching out.
  • Posted Tue 13 Dec 2016 03:58 PM CST
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Hi Kristen, My name is Delia Dumitriu and I paid for 2016 Get in Rhythm conferences videos and I do not know how to watch it again. Please, HELP! Thank you.
  • Posted Mon 21 Nov 2016 05:06 PM CST
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I believe the StopAfib.org folks reached out to you on this. Please let me know if you have any more questions!
  • Posted Tue 13 Dec 2016 03:47 PM CST
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Hi Kristen. Re: nuclear stress test and the TSA. After having a nuke test a few years ago my cardiologist just casually asked if I was taking a flight within the next few days ( what are the odds right ? ) and I was. So I got a reference letter from him with original signature plus a special number to call if clarification was required. So I'm going thru the fast line as a KTN at Ft Lauderdale's TSA obstacle course and, yes, set off their radiation sniffer. And all hell broke loose. Apparently it doesn't go off too many times. I was surrounded by about a dozen screaming, pointing people all in uniform and all shouting different demands.
Why I didn't immediately go into afib is a miracle. Anyway, the letter from my cardiologist saved my bacon. And I made my flight. Had I not had the letter, I obviously would have missed my flight. And probably put on the "terrorist no fly list" for the rest of my life.. Who knew those radioactive sniffers were so sensitive? Guess that's good news for our nation's safety. Bob
  • Posted Sat 05 Nov 2016 08:24 AM CDT
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I am so sorry for my very delayed response. I keep missing the comments on my profile- I apologize for that! Oh wow! I am sure that was a very stressful experience! I am so glad that you had that letter from your cardiologist. That is a really helpful tip for the other community members who have had that test. Thank you for sharing.
  • Posted Tue 13 Dec 2016 03:50 PM CST
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Kristen, whoever designed this website it is awesome. I don't work directly with Atrial Fib patients, but indirectly managing a stroke program. Has AHA/ASA considered developing the same type of thing for stroke? Thanks to the AHA/ASA for creating such a useful website. Janet
  • Posted Thu 03 Nov 2016 11:56 AM CDT
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Hi Janet! Thank you for your kind comments!! This site was developed by the AHA/ASA and StopAfib.org and the designer is Live4Life Media. The AHA/ASA has an online community for heart and stroke patients called the Support Network. Here is a link to it: http://supportnetwork.heart.org/home
  • Posted Tue 13 Dec 2016 03:46 PM CST
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Thanks for responding. I had not come across your name and was wondering. Cathy Lewis told me you are a great asset.

I wanted to let you know what a beautifully designed website this it. On top of looks is is user friendly, not too common lately.

Thanks again,
It's nice to meet you...

Cathy Bandy
  • Posted Thu 15 Sep 2016 05:35 PM CDT
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Thank you! We appreciate that! If you ever have any suggestions to make the site better, we would love to hear them!
  • Posted Mon 19 Sep 2016 10:30 AM CDT
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Hi, I no longer have the option to edit a Post I made 4/5 days ago - searched Help etc but nothing - there used to be an option at the bottom of the post.
Can you help ?
Another puzzle is why some posts have 'Likes' & others have 'Good Answer' or such - all that I need is a link to relevant details.
Thank you
  • Posted Wed 14 Sep 2016 07:34 PM CDT
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Hello, I sent you an internal message with some information on this! Let me know if you don't receive it! Thank you!
  • Posted Mon 19 Sep 2016 10:32 AM CDT
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Do you work for the AHA/ASA?
  • Posted Sat 10 Sep 2016 05:46 AM CDT
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Hi Cathy! Yes, I do work for AHA! :)
  • Posted Mon 12 Sep 2016 10:24 AM CDT
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I have tried to unsubscribe several times... no success
  • Posted Wed 20 Jul 2016 12:13 PM CDT
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I am sorry. Are you trying to unsubscribe from the Daily Digests?
  • Posted Thu 11 Aug 2016 04:06 PM CDT
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In other words I'm asking for information, real info on Tikosyn or Sotalol meds Vs RF ablation 80-90% success rates. Asking a lot!
  • Posted Tue 05 Jul 2016 09:40 PM CDT
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I use tikosyn regular twice daily, will no work for all but seems to help me, I get mine from Veterans Hospital, some say its rather expensive
  • Posted Wed 02 Nov 2016 11:30 AM CDT
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Yes, I just went from paroxysmal AFIB to Persistent AFIB a week ago Sunday. Yes, Persistent. I was AFIB free since my Artic Front Cryo-ablation success April 8th 2015. It was soo great to be AFIB free now back to Persistent kind. How do I research the two types of potential antiarrhythmics meds? Like Sotalol and Tikosyn? The treatment option I'm leaning toward is a more permanent 2nd type RF ablation in the Left Atria I believe. Waiting for answers from my AFIB team this week. And its only Tuesday eve.
  • Posted Tue 05 Jul 2016 09:38 PM CDT
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Update on my persistent AFIB not what I wanted
  • Posted Fri 22 Jul 2016 06:26 AM CDT
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Hi Kristen, Never mind my note I found out how to decrease the frequency myself of the postings TY anyway
  • Posted Wed 22 Jun 2016 04:06 PM CDT
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I am taking Pradaxa and Flecainide to control my AFIB and is working great. However I am low in magnesium and Omaga 3. Will supplements interfer with the Pradaxa?
  • Posted Mon 20 Jun 2016 10:01 AM CDT
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Just found out about my flutter -- when I did pre-op for a spine surgery because of a sciatic nerve problem. Now on Eliquis (two days). Awful sticker shock at pharmacy. I see that there are discounts available, but not for Medicare folks. Any ideas on cheaper access?
  • Posted Mon 20 Jun 2016 09:22 AM CDT
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good morning
  • Posted Wed 15 Jun 2016 05:14 AM CDT
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Good morning everyone, I have been reading all of the comments, thank you for continuing to teach me.
  • Posted Fri 10 Jun 2016 06:03 AM CDT
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i AM 73 and have afib even with a pacemaker. thought that the pacemaker would take care of that but not. Had afib on the 23rd and it was as tho no pacer. WHY. I also have small vessel blockages but vessels too small to stent so treating with meds already taking. Don't see how that will change things. Frustrated and what to do now? Anyone my age still having afib with pacemaker? Nancy
  • Posted Thu 09 Jun 2016 07:38 AM CDT
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I am also 73 and have a pacemaker.
  • Posted Mon 13 Jun 2016 08:25 PM CDT
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Hi Nancy. I am moving this post over to the community forum. Stay tuned for responses from other members of the group. Thank you.
  • Posted Thu 09 Jun 2016 03:20 PM CDT
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Yes Kristen: You may certainly post my query to the forum. thank you. Mel
  • Posted Wed 08 Jun 2016 07:05 PM CDT
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I have Atrial Flutter plus a Pace Maker which is on rate control and controls my heart between 60 and 130 BPM. Since I have heart block my heart rate won't exceed 130. The MIDI test confirmed I do not have blockage. I generally tire easily but some days are worse than others. My Cardiologist does not know why. Is it possible that my A Flutter rate is faster some days than others and hence my circulation is worse on those days?? Can anyone suggest why I would feel good one day and tire very easily the next. I wi;; appreciate your comments. Mel
  • Posted Fri 06 May 2016 06:16 PM CDT
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Thanks so much for your comment Mel. May I post this question in the community forum for you?
  • Posted Wed 08 Jun 2016 04:20 PM CDT
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Yep, I have learned an extensive amount of knowledge and facts and information. I am amazed. Yes, I have learned that 1) weight obesity affect AFIB and the entire heart 2) Amiodarone meds affects my Pulmonary functions. Stopped taking that 2 years ago. Thank goodness. And my health has become an integral part of my life the last year since my PVI Cryo-ablation success! More post later.
  • Posted Thu 28 Apr 2016 09:25 PM CDT
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I am so glad that you have learned so much from My AFib Experience. I hope that this site and the community members continue to be a benefit to you! Thank you for sharing!!
  • Posted Wed 08 Jun 2016 04:21 PM CDT
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hi Kristen,thank you for your time, I have learned sooo much here, it has helped me to move on and get back to a semi-normal life lol, keep up the great work, don.
  • Posted Fri 22 Apr 2016 03:14 AM CDT
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That is wonderful to hear. Thank you for sharing!
  • Posted Wed 08 Jun 2016 04:21 PM CDT
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Hello Kristen, I'm new here. That is a nice photo of you. Your face is beautiful! Nice to meet you. Thank you for taking time out of your busy day to moderate for us. It is comforting there are people like you who have compassion and care for sufferers of this condition. Knowing that makes coping with this malady a little easier to bear. This looks like a good place for me to start in understanding how other people are affected by this condition. My cardiologist only told me that I have a-fib and what I can possibly expect with this new medication, but not much else. Hopefully, I can find more information here. Take care and have a great day.
  • Posted Wed 20 Apr 2016 03:42 PM CDT
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  • Posted Sat 02 Apr 2016 09:37 AM CDT
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Hi! We have some information about ablation procedures on this page: http://myafibexperience.org/healthcare-office/treatment/catheter-ablation. If you post any questions you have about ablation in the community forum, there are a lot of My AFib Experience members that would be able to share their experiences with you. Thank you.
  • Posted Thu 21 Apr 2016 04:04 PM CDT
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