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To Join Our ONLINE COMMUNITY For Atrial Fibrillation


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I am new to this site.  Diagnoses with AFIB with RVR almost a year ago but had episodes for several years prior that I ignored.  The episode where I finally decided that something was wrong got me to drive myself to the ER.  I am trying to manage this condition and hope to learn on this site from others.  
  • Posted Sat 18 Mar 2017 01:10 PM CDT
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Hello.  I'm new to my a-fib experience.  Diagnosed about a year ago.  Am recently experiencing PVC's again. Would like to start taking a magnesium supplement but am not sure which to take.  I have ordered some Ancient Minerals magnesium oil.  I asked my Doctor and he said to just take any magnesium supplement, but I know some are better than others.  Would appreciate any suggestions.
  • Posted Thu 16 Mar 2017 11:29 PM CDT
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I am trying to clean up my messages and cannot get old messages to go to trash.  Please help.
  • Posted Mon 13 Mar 2017 09:21 AM CDT
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How do I get to a question that I asked?  Thanks
  • Posted Thu 09 Mar 2017 04:07 PM CST
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Hi Kristin: A few times I have received unwanted email from people who apparently use Afib for reasons other than health. Some time ago, I got an email from someone wanting to start up some business and yesterday two from people (or person, their emails were suspiciously similar), one looking  for "a lasting friendship", the other starting with "my dear beloved, I'm so glad I found you"!! Is there any way I can block these specific emails without blocking other Afib alerts about private emails from members? I checked out the privacy tab but it isn't clear to me how to use it so people can contact me, but not goons like these. thank you.
  • Posted Sun 05 Mar 2017 05:12 AM CST
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Hi Jinny,

I am sorry abou that. I just sent you a private message about this.

Thank you!
  • Posted Tue 07 Mar 2017 10:10 AM CST
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I want to change my name as it appears in the blogs.
Its now Garybjordan and I want it to be a nickname instead.
I have gone to the profile area and cannot see where to change it.
If you could change it for me....I would prefer Garo.
Let me know.
  • Posted Mon 30 Jan 2017 08:51 AM CST
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Hi Garo,

​I sent you a message that this has been done, but I just wanted to make sure you saw it!
Thank you!
Kristen, AHA
  • Posted Tue 07 Feb 2017 11:21 AM CST
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im 30 years.
i have Af rytm once at last september. but i didint have good filling. every time i am disturb about my heart(maby in risk or no). every time i toch my chess and disturb. please help me.
  • Posted Tue 10 Jan 2017 04:27 AM CST
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Hi Schooli_1987. I would definitely talk to your doctor about this so that they can diagnose you and put you on the appropriate treatment. Thank you for reaching out. Here is some more information for people recently diagnosed with AFib that may be helpful information in addition to your conversation with your doctor.
  • Posted Tue 10 Jan 2017 09:07 AM CST
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hi Kristian
I have question.
can i have drink(wine or beer)- i have af rytm once in last septembr
  • Posted Sun 01 Jan 2017 02:53 PM CST
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Thank you for posting and welcome to the community. This is a question that you should ask your doctor as everyone is different!
Thank you!!
  • Posted Tue 03 Jan 2017 10:13 AM CST
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Hi Kristen
I have a question: My mom has A Fib and I'm starting to be bothered with this. She typically gets this in the morning while lying in bed, and her heart rate starts beating so fast and irregularly, and it tires her out for the rest of the day and even the next day.
Is there anything that she can do to help this, as it happens mostly in the morning .... Before any coffee / food, etc.
  • Posted Tue 13 Dec 2016 11:36 AM CST
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Hi Aaron, Thank you for so much for reaching out. I am sure you had already done this, but if not, I would talk to her cardiologist about this and see what he/she would recommend to reduce her symptoms in the morning. However, feel free to post this comment in the community forum where others can share with you what they have done to manage their AFib and reduce symptoms. Please let me know if you need any help with this.

On this website, we have some information that may be helpful to you after you talk with her cardiologist about treatment options. You may want to check out these pages: and

Thank you again for reaching out.
  • Posted Tue 13 Dec 2016 03:58 PM CST
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Hi Kristen, My name is Delia Dumitriu and I paid for 2016 Get in Rhythm conferences videos and I do not know how to watch it again. Please, HELP! Thank you.
  • Posted Mon 21 Nov 2016 05:06 PM CST
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I believe the folks reached out to you on this. Please let me know if you have any more questions!
  • Posted Tue 13 Dec 2016 03:47 PM CST
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Hi Kristen. Re: nuclear stress test and the TSA. After having a nuke test a few years ago my cardiologist just casually asked if I was taking a flight within the next few days ( what are the odds right ? ) and I was. So I got a reference letter from him with original signature plus a special number to call if clarification was required. So I'm going thru the fast line as a KTN at Ft Lauderdale's TSA obstacle course and, yes, set off their radiation sniffer. And all hell broke loose. Apparently it doesn't go off too many times. I was surrounded by about a dozen screaming, pointing people all in uniform and all shouting different demands.
Why I didn't immediately go into afib is a miracle. Anyway, the letter from my cardiologist saved my bacon. And I made my flight. Had I not had the letter, I obviously would have missed my flight. And probably put on the "terrorist no fly list" for the rest of my life.. Who knew those radioactive sniffers were so sensitive? Guess that's good news for our nation's safety. Bob
  • Posted Sat 05 Nov 2016 08:24 AM CDT
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I am so sorry for my very delayed response. I keep missing the comments on my profile- I apologize for that! Oh wow! I am sure that was a very stressful experience! I am so glad that you had that letter from your cardiologist. That is a really helpful tip for the other community members who have had that test. Thank you for sharing.
  • Posted Tue 13 Dec 2016 03:50 PM CST
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Kristen, whoever designed this website it is awesome. I don't work directly with Atrial Fib patients, but indirectly managing a stroke program. Has AHA/ASA considered developing the same type of thing for stroke? Thanks to the AHA/ASA for creating such a useful website. Janet
  • Posted Thu 03 Nov 2016 11:56 AM CDT
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Hi Janet! Thank you for your kind comments!! This site was developed by the AHA/ASA and and the designer is Live4Life Media. The AHA/ASA has an online community for heart and stroke patients called the Support Network. Here is a link to it:
  • Posted Tue 13 Dec 2016 03:46 PM CST
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Thanks for responding. I had not come across your name and was wondering. Cathy Lewis told me you are a great asset.

I wanted to let you know what a beautifully designed website this it. On top of looks is is user friendly, not too common lately.

Thanks again,
It's nice to meet you...

Cathy Bandy
  • Posted Thu 15 Sep 2016 05:35 PM CDT
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Thank you! We appreciate that! If you ever have any suggestions to make the site better, we would love to hear them!
  • Posted Mon 19 Sep 2016 10:30 AM CDT
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Hi, I no longer have the option to edit a Post I made 4/5 days ago - searched Help etc but nothing - there used to be an option at the bottom of the post.
Can you help ?
Another puzzle is why some posts have 'Likes' & others have 'Good Answer' or such - all that I need is a link to relevant details.
Thank you
  • Posted Wed 14 Sep 2016 07:34 PM CDT
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Hello, I sent you an internal message with some information on this! Let me know if you don't receive it! Thank you!
  • Posted Mon 19 Sep 2016 10:32 AM CDT
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Do you work for the AHA/ASA?
  • Posted Sat 10 Sep 2016 05:46 AM CDT
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Hi Cathy! Yes, I do work for AHA! :)
  • Posted Mon 12 Sep 2016 10:24 AM CDT
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I have tried to unsubscribe several times... no success
  • Posted Wed 20 Jul 2016 12:13 PM CDT
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I am sorry. Are you trying to unsubscribe from the Daily Digests?
  • Posted Thu 11 Aug 2016 04:06 PM CDT
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In other words I'm asking for information, real info on Tikosyn or Sotalol meds Vs RF ablation 80-90% success rates. Asking a lot!
  • Posted Tue 05 Jul 2016 09:40 PM CDT
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I use tikosyn regular twice daily, will no work for all but seems to help me, I get mine from Veterans Hospital, some say its rather expensive
  • Posted Wed 02 Nov 2016 11:30 AM CDT
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Yes, I just went from paroxysmal AFIB to Persistent AFIB a week ago Sunday. Yes, Persistent. I was AFIB free since my Artic Front Cryo-ablation success April 8th 2015. It was soo great to be AFIB free now back to Persistent kind. How do I research the two types of potential antiarrhythmics meds? Like Sotalol and Tikosyn? The treatment option I'm leaning toward is a more permanent 2nd type RF ablation in the Left Atria I believe. Waiting for answers from my AFIB team this week. And its only Tuesday eve.
  • Posted Tue 05 Jul 2016 09:38 PM CDT
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Update on my persistent AFIB not what I wanted
  • Posted Fri 22 Jul 2016 06:26 AM CDT
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Hi Kristen, Never mind my note I found out how to decrease the frequency myself of the postings TY anyway
  • Posted Wed 22 Jun 2016 04:06 PM CDT
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I am taking Pradaxa and Flecainide to control my AFIB and is working great. However I am low in magnesium and Omaga 3. Will supplements interfer with the Pradaxa?
  • Posted Mon 20 Jun 2016 10:01 AM CDT
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Just found out about my flutter -- when I did pre-op for a spine surgery because of a sciatic nerve problem. Now on Eliquis (two days). Awful sticker shock at pharmacy. I see that there are discounts available, but not for Medicare folks. Any ideas on cheaper access?
  • Posted Mon 20 Jun 2016 09:22 AM CDT
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good morning
  • Posted Wed 15 Jun 2016 05:14 AM CDT
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Good morning everyone, I have been reading all of the comments, thank you for continuing to teach me.
  • Posted Fri 10 Jun 2016 06:03 AM CDT
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i AM 73 and have afib even with a pacemaker. thought that the pacemaker would take care of that but not. Had afib on the 23rd and it was as tho no pacer. WHY. I also have small vessel blockages but vessels too small to stent so treating with meds already taking. Don't see how that will change things. Frustrated and what to do now? Anyone my age still having afib with pacemaker? Nancy
  • Posted Thu 09 Jun 2016 07:38 AM CDT
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I am also 73 and have a pacemaker.
  • Posted Mon 13 Jun 2016 08:25 PM CDT
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Hi Nancy. I am moving this post over to the community forum. Stay tuned for responses from other members of the group. Thank you.
  • Posted Thu 09 Jun 2016 03:20 PM CDT
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Yes Kristen: You may certainly post my query to the forum. thank you. Mel
  • Posted Wed 08 Jun 2016 07:05 PM CDT
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