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Your Questions About Medications

Hello My AFib Experience community members!

We are planning to create videos of an EP responding to common questions from AFib patients about their medications.

Here are some of the questions we intend to ask of the EP:
  • If I prefer not to be on medication of any kind because I don’t like the side effects, what will happen if I opt out of medication for AFib?
  • Can I also reduce my risks just by using “natural remedies?”
  • What should I do if I really don’t like the side effects?  
  • If medications for AFib can cause bleeding and I’m not sure that’s a risk I want to take, how should I go about making this decision?
  • I can definitely feel it when I’m having AFib, so can I just take anticoagulants when I’m actually having AFib?
  • What pros and cons should I consider when looking at Warfarin or one of the newer oral anticoagulants for my AFib?
  • Is it a problem if I'm on warfarin but cannot stay in the therapeutic range?
  • If I start this medication for AFib, do I need to plan to be on it for the rest of my life? 
  • How will we test the medication to find out if it’s really working for me?
  • If I forget to take my anticoagulant medication, am I briefly at higher stroke risk?
Are there other questions about use of medications for AFib that we should ask? They should be general questions about taking medications, or about medications that serve a specific function (such as rate control, rhythm control, or stroke prevention). They should not be about a specific brand name of medication, nor your specific issues with that medication. Questions asked on the video should benefit the whole afib community. Please post any such additional questions in the comments section below. 

Thank you.

American Heart Association and StopAfib.org
Posted by Mellanie at StopAfib.org on Sep 4, 2016 5:58 PM America/Chicago

Comments

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mellanie, i think this is a great idea and am looking forward to seeing the results,i have sooo many questions that my cardiologist does not seem to have the time to give me the answers, it took months for me to finally get to ask what my diagnosis was , turned out to be an nonischemic cardiomyopathy due to chronic afib ,im in permanent afib as cardioversion failed.thank you for your time here, you are a great benefit to us affibers, thank you.
  • Posted Mon 05 Sep 2016 04:46 AM CDT
A question I would really like to know the answer to is whether the new NOACs are truly superior for someone whose INRs are well-controlled, i.e are in the therapeutic range more that 70% of the time, on warfarin. Thanks very much for arranging the question and answer session.
  • Posted Mon 05 Sep 2016 08:01 AM CDT
Excellent~! Thank you~!
Zippy
  • Posted Mon 05 Sep 2016 08:28 AM CDT
Great questions in your list and I look forward to answers. One additional question - for those with paroxysmal AFib, is there a higher risk for further heart issues by not taking medication?
  • Posted Mon 05 Sep 2016 09:06 AM CDT
Great idea. I'd like to know why taking aspirin as a blood thinner is not an option to reduce the chance of blood clots vs., say, Warfarin or Eliquis.
  • Posted Mon 05 Sep 2016 09:31 AM CDT
would love to know the answers to all these questions
  • Posted Mon 05 Sep 2016 09:59 AM CDT
I am very interested in these questions! Do you know when this video will be on this site?
  • Posted Mon 05 Sep 2016 10:00 AM CDT
Anxious to see the answers, especially for "If I forget to take my anticoagulant medication, am I briefly at higher stroke risk?" This past Saturday I was 4 hours late taking it due to circumstances out of my control (i.e. living life). I was worried about it the whole 4 hours.
  • Posted Mon 05 Sep 2016 01:57 PM CDT
If I have paroxysmal AFib do I need to continually be on anti-arrhythmic medication, or can I only take it when I go into aFib? (The "pill in the pocket" routine.)
Also, considering blood thinners, would the same theory apply? Meaning take a pill only when needed?
  • Posted Mon 05 Sep 2016 06:59 PM CDT
Is it possible that augmenting the typical medications used to prevent Afib with mineral, amino acid or herbal supplements could allow one to take lower doses of the prescription medications?
  • Posted Mon 05 Sep 2016 09:42 PM CDT
I'm finally getting back to thank you all for your additional questions and comments. We actually had the opportunity to interview two of the world's top electrophysiologists who deal with this subject at the Afib Patient Conference about these questions and we can hardly wait for these videos to be processed and posted. Thank you, again, for your help.

Mellanie
  • Posted Wed 28 Sep 2016 11:00 AM CDT
My paroxysmal went persistent in August ( resting hr=75) ...after treadmill, got prescribed lowest dosage of flecainide..., twice a day....too chicken to start it ( side effects etc , no one to keep an eye on me ....Who has the tlc to talk me / walk me into it ....
  • Posted Wed 02 Nov 2016 09:26 AM CDT
Is the video available yet? Hope I didn't miss it.
  • Posted Mon 09 Jan 2017 03:34 PM CST
The videos with answers to your questions are available at http://myafibexperience.org/blogs/16/53

Mellanie
  • Posted Wed 12 Apr 2017 05:01 PM CDT