Jeanamo

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Question... On some of your posts you say that you got a pacemaker becuase of your low heart rate.  how low?  I'm in NSR now and have been so for five days.  Yeah.  First time in about a year so this is osrt of something new for me.  But now when I am sitting and quiet my HR drops to the 40's and I have recorded some sleeping periods of the upper 30's.  Is this now too low?  My typical HR average for the day is mid 50's.
  • Posted Wed 13 Dec 2017 03:13 PM CST
Hello, Bob!  I appreciate your comments.  This will be a sad Christmas for us as we lost a son last March to cancer less than a month after his 50th birthday...and less than a month after the dignoses.  I have found the path of grieving for losing a child to be a hard one.  However, we will still "celebrate" Christmas as best we can with family.  I hope that you and your family are all well and have a Merry Christmas and a happy, healthy New Year too!  Best  wishes......Jean
  • Posted Wed 13 Dec 2017 01:33 PM CST
Hi Jean.  Re:   your comment about NOAC getting out of your body in 17-24 hours.  A NOAC's half life is in that range.  I know all four are different in how long it takes to get out of your body but typically the hours mentioned are the meds half life. 
Wishing you and your husband a Merry Christmas and a healthy New Year.  Bob
  • Posted Wed 13 Dec 2017 12:47 PM CST
Poor Jean is getting slammed for leaving out a few countries.  What started out as a great idea is turning into a lot of work for you.  Hang in there Jean.  And Merry Christmas.  Bob
  • Posted Thu 07 Dec 2017 02:10 PM CST
Jean,
Thanks for the prompt reply. I will do what you suggested.
OUMike
 
  • Posted Mon 04 Dec 2017 03:55 PM CST
Jean,

​Hello. Thanks for the summary of who with AFiB is from where.
Is there a way for me to contact my fellow Overland Park Afibber to meet and visit about AFiB?
​Thanks.

​OUMike
  • Posted Mon 04 Dec 2017 01:18 PM CST
Jeanamo,
You mentioned in one of your post " It has taken 3 ablation procedures for me to remain in normal sinus rhythm, but I have been in NSR for more than 3 years now. " I was wondering if prior to your ablation you had paroxysmal AFIB or persistent? 

Thank You Al
  • Posted Mon 04 Dec 2017 06:17 AM CST
Jeanamo,

Thank you for sharing your experience, it is very helpful. I too have paroxysmal AFIB but my rates are not as high as yours were earlier.  I get into the 170's with ex and some time at rest. I go for my first ablation this Friday. Thanks again for sharing!!
  • Posted Mon 04 Dec 2017 04:47 PM CST
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Hello, Bob!  Happy Thanksgiving to you and your family too.  We have much to be thankful for.
Best wishes, 
Jean
  • Posted Sat 18 Nov 2017 09:51 AM CST
Hi Jean.  Those are some very nice complements you're passing on to Bor.  Thanking him for his input and also his excellent English especially.  Well done.  Happy Thanksgiving to you and your husband. Bob
  • Posted Sat 18 Nov 2017 05:08 AM CST
Jeanamo you are so helpful with your insight on A Fib. I was just diagnosed in May with PAF. I appreciate your input and how helpful you are in supporting and educating the members of the group!
  • Posted Wed 18 Oct 2017 06:20 AM CDT
Thank you, Kate.  I appreciate your kind words.  I think it is so important to have a support group like this forum where we can share our experiences and information.  It really is helpful to know that we are "not alone" in our A-fib journeys.  Wishing you the best.....Jean
  • Posted Wed 18 Oct 2017 09:21 AM CDT
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Sandra...try this: Go to www.myafibexperience.org/welcome.
Next click on the big My A-Fib Experience banner at the very top of the page
Next click on the A-Fib Forum link.
This should take you to all the posts made on the website.  Then you can read all the ones of interest to you and respond to them if you wish.
Let me know if this helps. I have put an icon in my taskbar so that all I have to do is click on it to get to the website.
  • Posted Mon 25 Sep 2017 03:16 PM CDT
Jeanamo, I'm confused on how to use this site. I get emails that there is a message or update but when I click into site it is things I have already seen or someone's name is highlighted but when I click into them it goes no where as well. Help
  • Posted Mon 25 Sep 2017 02:48 PM CDT
I agree I am having trouble navigating this site as well!
  • Posted Mon 09 Oct 2017 04:09 PM CDT
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Thanks for the information. What was funny is that you said the same thing as my in home nurse said,"Better be safe then have a broken bones. I found a bag at Goodwill the cover my seat and ties on the handle and it is deep. I am able to get alot items in the bag. If I have to get alot of items I have someone with you. I thank God I am much better, but still having problems but able to live at home. I do live alone so I do have a alert button. Thanks again and God bless

ave some one with me. 
  • Posted Fri 26 May 2017 03:57 PM CDT
Thank you so much for your comment about an ablation and Tikosyn. Everyone on this blog says that EP is a good option and he should evaluate the heart rate and condition of the patient. How does he evaluate? We had our first meeting with an EP and I did not feel like he evaluated anything. I mean he did not use any machines except checking a pacemaker to see if my Mom is in Afib. That is it. He did not like amiodorone for long term so that was good. Other than that, I did not feel that he evaluted anything else. Maybe we do not have a good EP???? Howevever, he was the first one in Dayton, OH started doing ablation 23 years ago. What does it mean an EP will evaluate her condtion to see if she is a candidate for an ablation? She has been in and out of the hospital 3 times over 2 months. I personally feel she is weak mentally and physically. I feel she needs time to recover. However, I do not know what will happen again if her heart rate will go high like 160 (happened 2 months ago). At the moment she is on metoporol. She is off amiodorone (she developed shaking). Hope her shaking will stop. 
  • Posted Sat 20 May 2017 07:52 AM CDT
I would like to connect with you.
I am getting a boston pacemaker ion June 2 and am wondering how it is working for you?
  • Posted Mon 15 May 2017 03:49 PM CDT
I was on Multaq for about 3 months but it didn't do anything for me so my cardiologist took me off of it.  I have leftover pills including a full sealed bottle of 60 pills that will expire in 2018.  If anyone is having trouble paying for this drug, I would be glad to send this to them.  They are in good condition..
  • Posted Tue 25 Apr 2017 01:15 PM CDT
Thank you for your comments! I have learned a lot - have been going through a lot of ups and downs since January and find that working with various cardiologist with different ideas has given me a lot of amxiety. (I just posted my story yesterday, new to site!) Reading about pacemakers here makes me less fearful, just wish the doctors presented it better in the beginning. Would have avoided a lot of confusion and two less trips to the ER! Not to mention congestive heart failure....thanks to my doctor who ignored me :-( 
wish I could leave my HMO but can not until "open enrollment" which is 2018. 
  • Posted Sun 02 Apr 2017 12:31 AM CDT
Jeanamo, I always appreciate your comments on this site!
Judy (Thumper2)
  • Posted Fri 24 Mar 2017 06:23 PM CDT
Thanks, Judy.  I always appreciate your comments too!
Jean
  • Posted Fri 24 Mar 2017 06:43 PM CDT
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i went to the doctor  today and they showed that my heart stops form 4 sec. to 6 sec. and they are discussing a pacemaker and same med.  Do you think this will help the a fibs?
 
  • Posted Thu 23 Mar 2017 02:30 PM CDT
Jean,  I'm heading to Florida tonight and will be on the road and off line till at least tomorrow (Mach 4) night. Have a good one.  

Roy
  • Posted Fri 03 Mar 2017 05:41 PM CST
After I got the pacemaker, I did not feel light headed.  However, I did still feel some fatigue because I continued taking medications that contribute to that.  I hope if you get the pacemaker that preventing the bradycardia will help you to feel better.  The procedure for having it "installed" is not one to cause fear and is not a long procedure. Of course, you will be sedated too.  I wish you the best in any future procedures you may have.  Hope this information helps.  Jean (MyA-fibExperience Community Leader)
  • Posted Fri 24 Feb 2017 08:48 AM CST
I really am glad for this web sight.  It helps me keep grounded.
thank you very much
  • Posted Thu 23 Mar 2017 02:31 PM CDT
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Jean.  Thanks for your response.  If I might ask you a question.  When you got your pacemaker, did it generally keep your heart at a high enough rate so that you didn't feel tired or light headed etc.  Thanks.
  • Posted Thu 23 Feb 2017 08:59 PM CST
Thank you for replying and hope you continue to stay in rhythm. I am hoping a second ablation will help but dr. said she couldn't get to all the pathways so do not know if she is considering another yet. She did say might have to have a pacemaker. I am getting a second opinion as soon as I can. Again thanks.
  • Posted Sun 18 Dec 2016 04:41 PM CST
onna66, if you are not comfortable with your present EP's recommendations, it might be a good idea to get a second opinion from another reputable EP. It is true that it can be difficult to ablate all the pathways that are causing the erratic electrical impulses...that is why it often takes more than one ablation to accomplish that. Also as I mentioned before, sometimes the impulses will find new "pathways" after an ablation and another ablation is necessary to eliminate those. I have a pacemaker...which was needed because the medicine I was taking was making my pulse much too slow. Having the pacemaker had not been a problem in any way and when I have my periodic pacemaker checks, it is good to know what my heart has been "doing" since the last one. I am wishing you the best in getting back into NSR with whatever procedure your doctor recommends. Keep in touch! Best regards, Jean
  • Posted Sun 18 Dec 2016 07:09 PM CST
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How far apart were your ablations and where did you have them done at?
  • Posted Mon 12 Dec 2016 11:14 AM CST
Hello onna66 ! In response to your question about my ablations. My second ablation was done in less than a year after the first one. The 3rd ablation was done about 9 months after the second one. That was at the end of September in 2014. I live in Tyler, Texas where we have a large medical community and 3 large hospitals. My procedures were done at the Christus Trinity Mother Frances Louis and Peaches Owen Heart Hospital. The electrophysiologist who performed all three procedures was Dr. John B. Sims. He and another electrophysiologist Dr. Weinert perform all the ablation procedures at this hospital and also at the University of Texas Health Science Research Hospital located here. Another hospital group East Texas Medical Center also has ablation procedures performed by other electrophysiologists. I have a great deal of faith in Dr. Sims' ability and I trust him to make the best decisions for my care as he spends most of every week doing these procedures and treating heart rhythm problems. Sometimes more than one ablation is required through no fault of the doctor....it can be difficult to "pinpoint" all the areas where the erratic electrical impulses are occurring in the atria...and also sometimes the electrical impulses will find new pathways through the ablated area....thus the necessity of more than one ablation. I have been a-fib free since the 3rd ablation in 2014...more than two years. I hope you are living in an area where there is a good electrophysiologist and a good hospital facility and I hope this information has been helpful to you. Best wishes...Jean
  • Posted Mon 12 Dec 2016 01:55 PM CST
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You seem to be doing well since you are functioning well and working 40 hours a week. The idea of only having a maximum of 5 years to live with congestive heart failure is just a statistical estimate....and is not a certainty for everyone. One of my sisters who had a diagnosis similar to yours lived longer than 5 years so I use her as an example. I do understand your concern and anxiety about this...but you are taking medicines that should be helpful in maintaining your best health...and hopefully for years to come. This forum is really a good place to learn from other people's experiences. Each of us are different....and our experiences vary.....so there is much information available. Best wishes for you as you move down this "bumpy road" and God's blessing on you also. Jean
  • Posted Sat 27 Aug 2016 12:40 PM CDT
thank you jeanamo,i have an ejection fraction of 55% and on my last dr.visit 4 mnths ago i was told that i did not have heart disease so that was a relief,i just sometimes wonder if continuing to take all these meds are worth it if i am going to die anyway soon,i sometimes feel like just stopping the meds and see what happens,i go back for another echocardiogram on oct 24th, my dr. has not discussed any procedure such as ablation with me as 2 try's with cardioversion failed during a 6 day period back in june 2015,he just chamges my meds from time to time, i appreciate your time very much, it helps to talk to someone older than i am that has experienced so much as you have in the past years, thank you for your response , hugggs and god bless, don.p.s. i will be 57 dec 4th
  • Posted Sun 28 Aug 2016 03:06 AM CDT
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