Newly Diagnosed Resources and FAQs

Newly Diagnosed Resources and FAQs


Resources and FAQs - For Patients

Interactive AFib Patient Guide
Partnering in Your Treatment 
FAQs about Afib
Guidelines for Treating AFib
Medication Tracker
Information Sheet

Resources and FAQs - For Providers

AFib affects about 2.7 million Americans, and AFib patients have a five-times greater risk for stroke. Get the below resources, in either print or downloadable versions, sent to you for free by completing this simple request form now.

2012-2013 Annual Impact Report
Interactive AFib Patient Impact Report
Living with AFib Brochure
AFib Toolkit for Professionals
AFib Infogra

Recent Discussions From The Newly Diagnosed Forum
MJODRH avatar

Hello!  I am 49 years old and a few months ago I was diagnosed with AFib.  About a year and a half ago wore a Zio patch and the results came back as SVT.  My medication was chaged to Hydralazine for HBP and Metropolol.  At first I seemed to respond well but then the palpitations/irregular heartbeat would return.  My meds would be increased and wash, rinse, repeat on the effects.  As my palpitation seemed to get worse, more often and longer, the doctor did another Zio patch.  When the results came back it showed I had Afib and I received like 4 or 5 calls from doctors to work out getting me on an appropriate thinner and to an EP.  My medication was increased again with minimal if any improvement.  This journey I've been on has been very frustrating and scary as it seems no matter the treatment what they episodes just get worse.   What stated as just some random palpiation has turned into episodes every few days that will last for ~12 hours and almost always start in the evening or during the night.  These episodes make me feel tired, anxious, and just overal lethargic.  Also, it increases my urine output and can keep we awake with ongoing trips to the bathroom.  The increased uriniation truly bothers me as as it is dehydrating and I worry about additional stress on my kidney as I am a transplant patient (post transplant 31 years, YAY!).  The kidney transplant also makes antiarthymics not a good choice. 

I don't know where this new Afib journey is going to take me, but I can tell you that the emotional toll is feeling heavy right now.  I hope that by reading about people's experiences will help me to process better and enlighten me with ways to identify triggers and communicate with my cardiologist/EP.

Thanks for reading and thanks for sharing your experiences.

MJ

NOLADan avatar

Hello. I'm 47 years old and was diagnosed with A-Fib just before Thanksgiving. 

I had an ablation Jan 29, and I enjoyed sinus rhythm for 3 days!  A few days later, back to the ER.

Last week I had my first cardioversion and got to enjoy a nice, slow sinus rhythm for 2 days. Today marks my 6th day in Afib without a break. 

I was taking Toporol 50mg 2x a day, Flecainide 150mg 2x a day, and Eliquis 5mg 2x a day.  Now the doctor has stopped my Flecainide and Sunday I start taking 400mg Amiodarone 2x a day.

I've been reading up on Amiodarone, and I have to say I'm scared to start taking it.

Been lurking and reading posts, and just felt the need to vent a little! Thanks

 

chmayer avatar

Had bypass surgery in 2004. Relatively good condition up until now. I was walking frequently and heart rate elevated some (90-110). I would rest for a few minutes and all was fine again. Two weeks before a scheduled Stress Test. I had same elevation to about 105 with normal sinus rythm. During the stress test A-FIB. They said my heart was very strong. Was perscribed Eliquis with directions. I am 77,  BMI is 23, and take numerous suplements. Now I know what Afib feels like. I never had it before the test! Now anytime I do any physical labor or exercise I get afib and it takes about 20 minutes to an hour to recover to normal sinus rythm. My cardoligist was upset that I had been given the stress test.

My question is did (can) a stress test initiate/start afib???  What now? Looks like western medicine is doing its best to hurt me.

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