From the American Heart Association and StopAfib.org

**The blog posts reflect the opinion of the author and do not necessarily reflect the opinions of the AHA**

Most Recent Blog Posts

  We're SO excited to announce that we have finalized the dates and location for the 2018  Get in Rhythm. Stay in Rhythm.® Atrial Fibrillation Patient Conference ! Drumroll, please … The 2018 Get in Rhythm. Stay in Rhythm.® Atrial Fibrillation Patient Conference is officially scheduled for August 3-5, 2018, at the Fairmont Hotel in Dallas, Texas. So ... Read More
Posted by Mellanie at StopAfib.org on AFib News Blog Jan 18, 2018 5:20 PM CST
StopAfib.org does regular live chats with the afib experts at Cleveland Clinic. The most recent one was held on December 15. We have now posted the final (edited) transcript from that live chat with Cleveland Clinic afib experts Dr. Walid Saliba and Dr. Mandeep Bhargava. Additionally, all of our previous live chats with Clevelend Clinic afib experts ... Read More
Posted by Mellanie at StopAfib.org on AFib News Blog Jan 2, 2018 11:46 AM CST
Good Morning Family! Please forgive the lull in communications over the past several weeks. I hope you all are keeping good health and enjoyed your Thanksgiving Holiday. As you know our annual Scientific Sessions was recently held in Anaheim, CA a couple of weeks ago. Below are a few highlights! See you in the Forum!    Scientific Sessions Highlights ... Read More
Posted by Daphne on AFib News Blog Dec 6, 2017 8:49 AM CST
The International Consortium for Health Outcomes Measurement (ICHOM) is recruiting patient advocates for its Standard Set for Atrial Fibrillation Working Group. These patient advocates will help develop outcome measures that matter to patients with AFib. Please see the attached flyer for more details about this opportunity and contact ... Read More
Posted by jseitz on AFib News Blog Nov 20, 2017 11:21 AM CST
I'd like to introduce  Daphne Hughes , our new American Heart Association colleague who will be focused on My AFib Experience.  Daphne has been at the American Heart Association for a while, working on other initiatives, but has recently joined the My AFib Experience project. Those of you who attended the Get in Rhythm. Stay in Rhythm. Atrial ... Read More
Posted by Mellanie at StopAfib.org on AFib News Blog Oct 3, 2017 11:23 AM CDT

Blog Post Drafts [ADMIN ONLY]

  • Answers To Your Medication Questions (And More) (Draft)
    We asked you what you wanted to ask the experts about medications (see this blog post at http://myafibexperience.org/blogs/16/53 ), and you gave us lots of questions to ask them. At the 2016 Get in Rhythm. Stay in Rhythm. Atrial Fibrillation Patient Conference in Dallas, we sat down with these two world-renowned AFib experts:  Dr. Prystowsky helped ... Read More
  • @Mentions are now available! (Draft)
    Did you know that you can now @Mention other members in the My AFib Experience community in your forum posts, when commenting on events and blog posts, and also on profile page comments too? With an @Mention you can call someone’s attention to a post or comment that you’ve written so they can read it and reply. How do you mention someone? Type the @ symbol and ... Read More

Share:

Recent Comments

Thank you Jonelle.  I emailed as you suggested.  Will let you know if I receive any follow up.  I have to admit if this is the route to follow, it isn't made clear in the letter.  Perhaps if the link were working on the letter it would not be so difficult.
Thank you
Elaine Valovic
Hi ‍  evalovic ‍,
I believe interested participants should email the following address:  z.dasgupta@ichom.org. (I'm sorry that that this comment box doesn't allow me to hyperlink the email address, but you can paste z.dasgupta@ichom.org into the "to" field of an email). 

Regards,
Jonelle (Community Admin member)
Hi Jonelle,
The link in the letter of explanation appears to be a dead link in that clicking does nothing and it cannot be copied and pasted.
The link as you provided it allowed me to copy and paste which brought me to the ICHOM web site.  But I see nothing there about
the AFIB standards project.
Your assistance and prompt response are appreciated
Elaine Valov...
Hi evalovic ‍,
Thanks for getting in touch. Just to confirm, you tried emailing the contact below?
Zofia Das-Gupta, ICHOM Project leader
z.dasgupta@ichom.org 

If the email to z.dasgupta@ichom.org bounced back to you, please confirm and I'll reach out to the rest of the team for advice. Thanks!

Jonelle (Community Admin member) 
Hi Jonelle,
Sorry it is not clear to me what contact information you have in mind.  The link to a Dr Gupta is not working and the link to the pamphlet has no clear way to volunteer.  Perhaps you could send us the linl you mean for us to use.  
Thank you
Elaine Valovic