Most Recent Blog Posts

  We're SO excited to announce that we have finalized the dates and location for the 2018  Get in Rhythm. Stay in Rhythm.® Atrial Fibrillation Patient Conference ! Drumroll, please … The 2018 Get in Rhythm. Stay in Rhythm.® Atrial Fibrillation Patient Conference is officially scheduled for August 3-5, 2018, at the Fairmont Hotel in Dallas, Texas. So ... Read More
Posted by Mellanie at StopAfib.org on AFib News Blog Jan 18, 2018 5:20 PM CST
StopAfib.org does regular live chats with the afib experts at Cleveland Clinic. The most recent one was held on December 15. We have now posted the final (edited) transcript from that live chat with Cleveland Clinic afib experts Dr. Walid Saliba and Dr. Mandeep Bhargava. Additionally, all of our previous live chats with Clevelend Clinic afib experts ... Read More
Posted by Mellanie at StopAfib.org on AFib News Blog Jan 2, 2018 11:46 AM CST
Good Morning Family! Please forgive the lull in communications over the past several weeks. I hope you all are keeping good health and enjoyed your Thanksgiving Holiday. As you know our annual Scientific Sessions was recently held in Anaheim, CA a couple of weeks ago. Below are a few highlights! See you in the Forum!    Scientific Sessions Highlights ... Read More
Posted by Daphne on AFib News Blog Dec 6, 2017 8:49 AM CST
The International Consortium for Health Outcomes Measurement (ICHOM) is recruiting patient advocates for its Standard Set for Atrial Fibrillation Working Group. These patient advocates will help develop outcome measures that matter to patients with AFib. Please see the attached flyer for more details about this opportunity and contact ... Read More
Posted by jseitz on AFib News Blog Nov 20, 2017 11:21 AM CST
I'd like to introduce  Daphne Hughes , our new American Heart Association colleague who will be focused on My AFib Experience.  Daphne has been at the American Heart Association for a while, working on other initiatives, but has recently joined the My AFib Experience project. Those of you who attended the Get in Rhythm. Stay in Rhythm. Atrial ... Read More
Posted by Mellanie at StopAfib.org on AFib News Blog Oct 3, 2017 11:23 AM CDT
We have been notified that our StopAfib.org 25% off discount code on the AliveCor Kardia Mobile will expire this coming Friday, August 11. If you want to take advantage of the discount, please do so right away. See details at the link below. Get a 25% Discount on the Kardia Mobile (AliveCor) EKG Device (US Only) Mellanie   Read More
Posted by Mellanie at StopAfib.org on AFib News Blog Aug 9, 2017 8:53 AM CDT
Webinar with Dr. Emelia Benjamin
Have you ever wondered whether your lifestyle can affect your afib, and whether you could make changes that could prevent or slow the progression of afib? If so, I'd like to invite you to listen in on a no-cost webinar playback of my interview with renowned afib genetics expert Dr. Emelia Benjamin this Thursday, June 29. Follow this link to sign up to ... Read More
Posted by Mellanie at StopAfib.org on AFib News Blog Jun 27, 2017 11:02 AM CDT
Eric N. Prystowsky, MD Advocate for Patients Award
If you know a healthcare professional who provides outstanding care and is an advocate for afib patients and their family members, you may wish to nominate him or her for the prestigious Eric N. Prystowsky, MD Advocate for Patients Award. This award will be presented at the 2017 Get In Rhythm. Stay In Rhythm.™ Atrial Fibrillation Patient Conference. ... Read More
Posted by Mellanie at StopAfib.org on AFib News Blog Jun 7, 2017 10:23 AM CDT
We've been getting lots of inquiries about when Early Bird registration will open for the 2017 Get in Rhythm. Stay in Rhythm.™ Atrial Fibrillation Patient Conference (August 4-6) so people can reserve their seats at the live event, and begin making travel arrangements.    And we couldn’t be happier about this, because it means we’re reaching those who ... Read More
Posted by Mellanie at StopAfib.org on AFib News Blog May 2, 2017 10:38 AM CDT
**This blog post reflects the opinion of the author and does not necessarily reflect the opinions of the AHA** I just returned from the American College of Cardiology (ACC) medical conference. Over the past six months, I have attended EP in the West in October, American Heart Association in November, AF Symposium in January, Western AF Symposium in ... Read More
Posted by Mellanie at StopAfib.org on AFib News Blog Mar 26, 2017 10:56 AM CDT
My AFib Experience community members,   We would like to give you the unique opportunity of posting some of your questions about atrial fibrillation for experts in the field. Submit your questions about atrial fibrillation and we will have world-renowned heart experts answer them in this forum.   Please post your questions as comments to this blog ... Read More
Posted by kristen.wadeAHA_ASA on AFib News Blog Mar 6, 2017 9:30 AM CST
The FDA is holding Listening Sessions in order to learn more from those with atrial fibrillation. These will be held by the FDA’s Center for Devices and Radiological Health. This is the part of the FDA involved in approving and regulating devices used in treating afib. For these listening sessions, they are looking for anyone with afib to share your ... Read More
Posted by Mellanie at StopAfib.org on AFib News Blog Mar 3, 2017 9:46 AM CST
The subject comes up quite frequently about how to find the best prices for the newer blood thinners (anticoagulants). After posting this info to a thread, I realized that it should be put in a place that is easy to find. That is why I am posting this to the blog so you can find these links more easily, and point others to this. Here are some resources to help: ... Read More
Posted by Mellanie at StopAfib.org on AFib News Blog Feb 18, 2017 11:08 AM CST
This morning, we announced the dates for the 2017  Get in Rhythm. Stay in Rhythm.™ Atrial Fibrillation Patient Conference ! Below is the email that we sent out. Please save the dates on your calendar and plan to be with us at the Fairmont in Dallas for this amazing event.  Mellanie We're SO excited to announce that we have finalized the dates and location ... Read More
Posted by Mellanie at StopAfib.org on AFib News Blog Feb 9, 2017 10:18 AM CST
Good Afternoon! We wanted to introduce you to our new My AFib Experience Community Leaders! We started a community leaders program  to ensure that all members of the community feel welcomed and supported. A few months ago, we had asked you to apply to be a community leader if you are interested. We have selected Jean (Jeanamo)  and Roy (Rbrandt) for this ... Read More
Posted by kristen.wadeAHA_ASA on AFib News Blog Feb 7, 2017 2:30 PM CST
This is a reminder of our Community Policies  and our Terms of Service . I’d like to emphasize two very important points. Avoid Copyright Issues: It is not OK to cut-and-paste or post material for which you do not own the copyright, and we reserve the right to remove anything posted that violates the copyright of another party. If you wish to share ... Read More
Posted by Mellanie at StopAfib.org on AFib News Blog Dec 28, 2016 11:43 AM CST
The holidays are a perfect time to give yourself peace of mind by purchasing an afib monitor, especially with these holiday discounts (US only) that are being provided through StopAfib.org. AfibAlert — a standalone device that doesn't require a smartphone — is available at a  holiday special price of $199 throughout the month of December.   Kardia ... Read More
Posted by Mellanie at StopAfib.org on AFib News Blog Dec 14, 2016 9:46 AM CST
Dear My AFib Experience Community Members,   Thank you to those of you that had already taken this survey. For those of you that had not taken it yet, we need your help. We are conducting an online survey about your experience on our community, My AFib Experience™ . We are looking to gain information from you to help us make our community better and improve ... Read More
Posted by kristen.wadeAHA_ASA on AFib News Blog Dec 13, 2016 2:36 PM CST
Hello, I just wanted to let you know that the navigation of the site has changed slightly. The navigation to all areas of the site can now be found on the black horizontal bar across the top of each page (except for the main AFib Town page). Please let me know if you have any questions or cannot find what you are looking for! Thank you! Kristen Read More
Posted by kristen.wadeAHA_ASA on AFib News Blog Oct 11, 2016 11:15 AM CDT
Hello!   We are excited to announce that we are launching a new Community Leaders Program for My AFib Experience. We plan to select several My AFib Experience members to serve in a volunteer capacity as leaders in the community forum. The role of the community leader is outlined below along with the selection criteria.   Role of the Community Leader: Read ... Read More
Posted by kristen.wadeAHA_ASA on AFib News Blog Oct 7, 2016 10:28 AM CDT

Recent Comments

Thank you Jonelle.  I emailed as you suggested.  Will let you know if I receive any follow up.  I have to admit if this is the route to follow, it isn't made clear in the letter.  Perhaps if the link were working on the letter it would not be so difficult.
Thank you
Elaine Valovic
Hi ‍  evalovic ‍,
I believe interested participants should email the following address:  z.dasgupta@ichom.org. (I'm sorry that that this comment box doesn't allow me to hyperlink the email address, but you can paste z.dasgupta@ichom.org into the "to" field of an email). 

Regards,
Jonelle (Community Admin member)
Hi Jonelle,
The link in the letter of explanation appears to be a dead link in that clicking does nothing and it cannot be copied and pasted.
The link as you provided it allowed me to copy and paste which brought me to the ICHOM web site.  But I see nothing there about
the AFIB standards project.
Your assistance and prompt response are appreciated
Elaine Valov...
Hi evalovic ‍,
Thanks for getting in touch. Just to confirm, you tried emailing the contact below?
Zofia Das-Gupta, ICHOM Project leader
z.dasgupta@ichom.org 

If the email to z.dasgupta@ichom.org bounced back to you, please confirm and I'll reach out to the rest of the team for advice. Thanks!

Jonelle (Community Admin member) 
Hi Jonelle,
Sorry it is not clear to me what contact information you have in mind.  The link to a Dr Gupta is not working and the link to the pamphlet has no clear way to volunteer.  Perhaps you could send us the linl you mean for us to use.  
Thank you
Elaine Valovic