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Mellanie at StopAfib.org

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Hi mellanie. Re magasium supplements. I feel that magasium is an important supplement for afib.  My cardologist  does not anysupplement traditional medicine.  I understand that magasium has blood thinning properties and some an cause lose bowels.  I want to take this supplement but am concerned because I take Prada and and sotalol.  Any adice will be appreciated.
  • Posted Sun 09 Apr 2017 08:46 PM CDT
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I am not aware of any blood thinning properties with magnesium.

You take it to "bowel tolerance", meaning start gradually and build up.

Mellanie 
  • Posted Sun 09 Apr 2017 08:54 PM CDT
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Hi Melanie! I am so happy to have found this forum. I am 86 and in January went into a-flutter which is now mostly a-fib. I also have severe sleep apnea, I thought there may be a correlation but my RT said no. Everything I have been reading is so interesting. I will share the abstract with her and see what she now has to say! Right now I am awaiting yet another opinion - seeing an EP. I requested this in January, was told no, and then was treated so poorly by 4 (at team) cardiologists (at the large HMO organization in No Cal) that it got to a point I didn't know who to trust. Working with them has caused more anxiety than my diagnosis. I finally found a wonderful cardiologist - but she put me on amiodarone - and SHE has finally suggested I see another EP to get another opinion. So thankful! So I hope, now after 3+ months I can get someone to spend time with me and figure out what's best for me. What a journey! 
  • Posted Thu 06 Apr 2017 09:44 PM CDT
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Correction: Dr Susan Redline 
  • Posted Fri 07 Apr 2017 11:04 PM CDT
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The video from Dr Susan Reding was so interesting! I will definately share it with my respitory therapist. She (my RT) did tell me that not wearing my bipap can contribute to pauses but never made me aware that arrhymias may follow after the pause. So nteresting!  (I am thin, 120lbs at 5' 9" , when I found out I had it I was so surprised. Sleep apnea can happen to any body type). 
  • Posted Fri 07 Apr 2017 11:02 PM CDT
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Helen,

I'm afraid that your RT is completely wrong. There has been much research, especially at Mayo and Case Western (and now Brigham, since Dr. Redline moved there from Case Western) showing the correlation. In fact, about 50% of those with afib also have sleep apnea. You may want to watch the video of Dr. Redline's presentation at our annual StopAfib.org AFib Patient Conference in 2015: http://www.stopafib.org/newsitem.cfm/NEWSID/565/ (Dr. Redline is at about 20 minutes in).

I hope you can find a good EP who can get your medication worked out. 

Mellanie
  • Posted Fri 07 Apr 2017 07:21 PM CDT
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Hi Melanie, as for the warfarin,yes,that's what I meant to say .My warfarin intake was too much and my inr reading was too high.Thanx.
  • Posted Sat 28 Jan 2017 07:51 AM CST
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Hi Melanie,
Yes I live in Magnolia, Tx which is about an hour or so from Houston, Tx & about 30 to 45 minutes from Conroe, Tx. I think I picked this up in the hospital. It is better but not completely gone. Guess I should be glad that I don't live south of Dallas at Cedar Hill cause I might be a lot worse. I wish you & your family a very "Merry Christmas"!
  • Posted Sat 24 Dec 2016 10:23 AM CST
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Hi Mellanie, I had not thought about ceder fever. I don't have any cedar here where I live in Magnolia, Tx at least not close to me but that is something I would have never thought about. So thankful that I am feeling better praying this ablation will keep me in NSR.
  • Posted Wed 21 Dec 2016 11:03 AM CST
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Lin, Cedar (actually, it's misnamed - it's really juniper) can blow in from elsewhere. In Austin, the nearest was 40 miles away in Georgetown. Here, we sometimes get a little of it, but the closest cedar we have seen is about 45 miles away. It's really bad south of Dallas at Cedar Hill. So, it doesn't have to be where you are located. That is why it's so bad in Central Texas, but you're probably closer to Houston, aren't you?
  • Posted Thu 22 Dec 2016 09:29 AM CST
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Good morning Mellanie! I read your story and see that your afib was aggravated by anesthesia during dental surgery. I just posted under a new category here "dental surgery with a-fib". I would appreciate you reading my post and commenting. Also would appreciate if you could explain on that thread more about your experience with dental surgery. Have a Blessed & Great Day! mustang girl (aka Elaine).
  • Posted Thu 20 Oct 2016 09:25 AM CDT
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I think I know what you're talking about now, though it's not in my story anywhere, so that was confusing.

But, I think I may have posted at some time here in the forum that in having a dental procedure once AFTER my afib surgery, my dentist called my surgeon and they both thought regular epinephine-based anesthesia would be OK. It wasn't - my heart started racing for a few hours afterwards.

Since that time, my dentists have always used lidocaine, which is epinephrine free.
  • Posted Thu 20 Oct 2016 09:45 AM CDT
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I think you must have me confused - I don't recall anything about dental surgery in my story.
  • Posted Thu 20 Oct 2016 09:35 AM CDT
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Thanks Melanie
  • Posted Mon 10 Oct 2016 12:05 AM CDT
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I am so happy thar I found Dr. Reic. Prystowsky, at St. Vincent Care Group, in Indianapolis, IN he is perfect for me. he has time for me and my question. I've had 2 cardiovesion. this last one seems to be working me. If you have a-fib please get a excellent EP. also having found this form is great.. tks for the help. Beverly Lenzo
  • Posted Sun 02 Oct 2016 10:57 PM CDT
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Beverly, You will be delighted to hear that we did a video interview with Dr. Prystowsky at the recent AF Patient Conference and those videos will be available soon on My AFib Experience. We have to get them edited, and they have to go through American Heart Association Science Reviews, but hopefully that will be fairly soon. ~~Mellanie
  • Posted Sun 09 Oct 2016 07:02 PM CDT
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Melanie, if I sign up for the conference on afib to watch at home, do I have to watch it when it is going on or can I watch it later and more than once.
  • Posted Wed 14 Sep 2016 12:42 PM CDT
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Soon after the conference, you will be able to replay all livestream sessions. And once the videos are ready, those will be available as well.
  • Posted Wed 14 Sep 2016 05:03 PM CDT
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I meant Eliquis
  • Posted Mon 12 Sep 2016 11:20 AM CDT
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Hi Melanie in one of your blogs you gave a website where we can obtain assistance with the cost of Eliauis, I did call and got some response they followed up but I inadvertently deleted their number. Can you post or send me that info again? Thanks much.
  • Posted Mon 12 Sep 2016 11:20 AM CDT
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Sorry I failed to get back here sooner. Here is the site for assistance and copay cards: https://www.eliquis.bmscustomerconnect.com/eliquis-360?TC=37861 and here is the site for applying for Eliquis financial assistance: http://www.bmspaf.org/Pages/Home.aspx There are phone numbers on both pages, but I am not sure which program you are referring to.
  • Posted Sun 09 Oct 2016 07:06 PM CDT
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I'm sorry - we're running as fast as we can on site preparing for the afib patient conference. It will be next week before I can recall where it's posted. Sorry.
  • Posted Wed 14 Sep 2016 05:09 PM CDT
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Dear Mellani,
I wish to post a topic but I don't know how.
My topic is this.
How long should I be on Xrealto before my  Catheter ablation
Please help me
Thank you
Best regards
G.Azzopardi
  • Posted Thu 08 Sep 2016 07:01 AM CDT
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Gaetan,
I've been traveling since your message came in, but I reached out to the company that created and manages MyAFibExperience.org to make sure things were working properly. Here is what they said:
"Yes it is. Members are able to start a new discussion (red ‘Start a Discussion’ button) from the MyAfib page, the main Forum page, and within each of the category pages."

I hope this helps.

Mellanie
  • Posted Sun 11 Sep 2016 10:30 AM CDT
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Don't know how to find her post. Yours was first post I have done.
  • Posted Sun 12 Jun 2016 04:57 PM CDT
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I think with supplemental insurance on Medicare it is about $38 a month at Costco. If your income is under $25,000 a year you can apply with Bristol Meyers to get it for free. perhaps the Senior citizen complaining of the cost would qualify if retired.
  • Posted Sun 12 Jun 2016 11:43 AM CDT
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Thanks for the info. $38 is pretty reasonable considering that the full cost is around $300/month. Could you post this info on the thread where she was asking about it. Thanks.
  • Posted Sun 12 Jun 2016 12:01 PM CDT
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Melanie, regarding Eliquis, I was told you cannot use the $10 coupon if you are on Medicare.
  • Posted Sun 12 Jun 2016 10:49 AM CDT
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My druggist has Eliquis in generic even when Walmart didn't.
  • Posted Wed 14 Sep 2016 01:16 PM CDT
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Doesn't Medicare cover most of the cost until you hit the donut hole? This is for those of us not yet on Medicare, for whom the co-pay is very high.
  • Posted Sun 12 Jun 2016 11:17 AM CDT
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Perhaps you might be interested in this: http://health.usnews.com/health-care/articles/2016-05-06/is-daily-blood-thinner-needed-for-irregular-heartbeat
  • Posted Sun 08 May 2016 08:52 AM CDT
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Melanie. I want to have an ablation for my afib. I had two cardo versions and two different meds that did not work. I have had no drug reactions or in any way disabled. I walk 2 to 3 miles a day. The reason is mental fatigue. I don,t know my. Afib will come. I am fine fora few days and back in afib this hasten goinging on for about nine month. I am scared when it occures. I probably can try other meds But will opt for an ablation. My ep said if it does not physically bother you. Ablation should bethe last resort but said that it will have to be my decision new meds or ablation. I decided to call his tomorrow and arrange for an ablation. I hope I am making the right because it does have risks but I just want to feel I do have some controll and hope it works. Also Melanie if an ablation works will it prevent future damage to my heart. I amso scared. I also am diabetic have liver disease from undected hemochromatosis and coronary artery diseAse. Thank you. Sometimes I wish we could meet face to face with some of the people we correspond with on this sight.
  • Posted Thu 17 Mar 2016 03:21 AM CDT
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Hi Mellanie I like to ask a question ,
I am looking to do an Ablation.
My aim is that I will do a Mini Maze
Are anticoagulants used during the procedure and after the Mini Maze.
Thank you
  • Posted Sat 12 Mar 2016 05:13 AM CST
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Hi Mellanie. I am also new to this site and I am not sure about posting. My husband had no idea he had afib. Found out when he went to his diabetic dr for his yearly checkup. Sent to emergency room and admitted. Put on sotalol 80 mg 2 time a day. He was informed that he had afib with rvr. Also found out he had a ferritin level over 750. Special blood work indicated he had hemochromotsis. Hemothologist said that could have be. A trigger for afib. Also shortly after had a stent put in for a clogged artery. I am concerned about the medication sotalol that he is taking. His pulse was between 47 to 50 beats a minute at rest. His doctor lowed the dose to 60 twice a day a few days ago. He is also on pradaxa 150 2. Times a day. Since he has hemochromatosis he in very limited as far as medication choices. MRI showed iron deposits in his liver and heart. All this could have been avoided if a simple blood ferritin test to check his iron levels . Is there anyone out there that has both hemochromatosis and afib? Is there a safer drug than sotalol. I feel a little more comfortable with a lower dose. Thank you
  • Posted Mon 26 Oct 2015 12:54 AM CDT
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A small percentage of the afib community also has hemochromotosis, so you might post in the forum looking for others with this. It is not appropriate for us to comment on or make recommendations regarding a patient's medications because we are not his doctors and don't have his labs or medical history, It is important to discuss your concerns with his doctors.
  • Posted Mon 26 Oct 2015 08:24 AM CDT
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Thanks Mellanie for your reply.Am grateful.
  • Posted Tue 10 Mar 2015 11:28 AM CDT
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Hello,thanks for the good work you are doing on human life.I had irregular heartbeat sometimes and i am presently using vasoprine,clopidogrel,atorvastatin and amlodipine.This drugs worked fine for me but recently i am experiencing ED.Do i need to change drugs or use viagra?
  • Posted Mon 09 Mar 2015 03:29 AM CDT
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Geoffrey, Thank you for the kind words. That is a conversation to have with your doctor; we here at the forum cannot advise about your specific medications because we are not doctors and also do not know your medical history. I hope you can get in to see your doctor soon.
  • Posted Mon 09 Mar 2015 08:54 AM CDT
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MELANIE, THANK YOU FOR REPLYING, DID ON LINE RESEARCH AND FOUND I MAY NOT BE A CANDIATEM FOR THE :5 BOX DUE TO PRIOUS 2003 OPEN HEART TRIPLE BYPASS WITH FAILED MAZE. i LIVE IN VIRGINIA(200)MILES FROM NORFOLK, REALLY WISH THIS WOULD HAPPEN FOR ME. SENT EMAIL TO OHIO WITH THIS QUESTION, HOPING TO GET A POSTIVE RESPONSE
  • Posted Sat 07 Mar 2015 02:37 PM CST
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Sorry you had a failed maze. You might want to talk with Dr. Philpott at Sentara to find out what options you might have. (Dr. Phipott hired Dr. Sirak at Sentara - Dr. Sirak has just started there). ~~Mellanie
  • Posted Sat 07 Mar 2015 02:41 PM CST
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I need to find anything about Afib. Had an Afib stroke in my sleep . Given Xarelto at the time and have nothing but side effects. Doctor is in the proses to change me to warfarin . I need to find out how to manage it.Any information will be helpful Thank Mellanie
  • Posted Sun 22 Feb 2015 06:25 PM CST
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Warfarin you have to watch green leafy Vega tables (vitamin k)
  • Posted Tue 27 Oct 2015 05:14 PM CDT
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Hi Melanie :
So Sorry if we have a difference of opinion re flying while taking Xarelto, and the link which I posted after googling "Flying while taking Xarelto" has been removed from your site because apparently you posted that you saw no sense in a blood thinner having any adverse effects on flying especially long distances ( Not your exact words but .THAT site apparantely disagreed with you due to their research. BUT sincerely I feel everyone here should be aware of other sites that give information on AFIB expecially that site which had updated findings on research regarding flying..and would prove beneficial for your readers, who can then decide themselves which is fact or not . Did you personally remove your response saying that blood thinners could not be linked to any adverse effects ? I have it on my email if you care to re read it ..and it DOES mention the danger of flying WHILE on Xarelto and not just the DVT that can be caused as you said later , by th e flying and not the Xarelto ..They bnever said that otherwise why would other drugs be perscibed instead of Xarelto when flying ? that makes no sense t me .
Most are aware that anyone who flies can be prone to DVT even when not on drugs ..That link addressed the USE of Xarelto while flying and I am sure many would have found usuefull but could google "flying while taking Xarelto and they would find that info, ..Xarelto is often switched for long flights as per statements from the head of Cardiology in Hospital Heredia and a well established Cardiologist at Internationally acclaimed CIMA Hospital. I am neither a DR nor Cardiologist but do lots of medical research as an AFIB patient who is here as many are to learn what is new and others experiences ,. May I ask if you are a cardiologist or doctor? I have not checked but I did assume so . so I am here to learn from others experieneces,
Did you remove most of my last post? If so please advise bdecuae I and some of us Afibbers will strat anothepresumed your site as others are for us to Learn and share experiences with each other . I posted re Flyong while taking Xarelto which you poo hood and said you saw NO possible reason for restricted flying while on the drug other sites for information on AFIB and the newer than warfariin , medicines, now in use One of which I take Xarelto. I am sorry if it offended you that I also use the site for Afib because posts that conflict with others ideas whether correct or incorrect , or whether the moderator is in disagreement should honor the freedom of speech (UNLESS posing as a Cardiologist or doctor) free speech allowing opinions and experiences to be shared ..When I posted I needed in put . and got some info I liked .But I notice that my last 2 posts have mostly been deleted and before I respond to that I need to know if indeed you or your staffvremove and or edit information posted here with hopes that we can learn from each other ..surpeising to se eany posts from any sites removed ..
Thank you I await your res[onse here if you do not mind, since the many doctors yet disagreeing as to side effects of the newr drugs we MAY learn from each other heere or any other AFIB sites
thank you
  • Posted Wed 10 Dec 2014 03:42 PM CST
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Hi pebbalita. My name is Summer and I'm a site admin of myAFibexperience.org. We can still see your link on the original post. And I can find no record of any public content being deleted. I'm wondering if maybe you shared it with someone on their personal profile page and they deleted it?
  • Posted Thu 11 Dec 2014 09:43 AM CST
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Your message was neither moved nor changed - I don't have the authority to do that as this is managed by the software company. Here is your post, with no changes: http://myafibexperience.org/forums/viewtopic/18/104 . What is confusing us is that your messages are appearing on threads that have nothing to do with the topic you're posting on and the developers are trying to figure out if there is a posting issue with your profile. Please reread the article as it deals with using Xarelto to make it safe to fly.

You mention that your posts have been deleted or edited. I don't have a way to do that. However, long posts get abbreviated as they appear on the page and you simply have to click on the post title to see the whole thing. Perhaps that is causing confusion.
  • Posted Wed 10 Dec 2014 05:07 PM CST
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Dear Mellanie. Than you so much for developing your website StopAfib.org. You have no idea how much help youve been to me over the last 2 1/2 years dealing with my Afib. Your resources help me find help and get it under control. Thanks again. Len Lovecchio
  • Posted Tue 09 Dec 2014 04:05 PM CST
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Len,

Thank you so very much for your kind words. I am thrilled that StopAfib.org has been helpful to you. Wishing you good luck with your afib.

Mellanie
  • Posted Tue 09 Dec 2014 11:30 PM CST
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