Mellanie True Hills is the CEO of StopAfib.org. The American Heart Association and StopAfib.org together bring youMyAFibExperience.org.
Our mission at StopAfib.org is to ensure that those living with atrial fibrillation get the best possible treatment. This includes helping doctors and other healthcare professionals to understand what it is like to live with afib and how to help us manage afib, and even overcome it.
Last fall, I reached out to theafib patient community through several online discussion forums, including theMyAFibExperience.orgforum, to gather input for a speech I was giving at the 2017 American Heart Association Scientific Sessions, a meeting of cardiovascular healthcare professionals from around the world. More than 1,000 of you came through when I asked, “What would you tell your healthcare providers about living with afib?”
Subsequently, I wrote an article based on that speech, which was recently published by theJournal of Cardiovascular Electrophysiology. The article shares what afib patients want our doctors to know, including five things that afib patientsdo notwant to hear and five things that afib patientsdowant to hear from our healthcare providers to improve our care.
TheJournal of Cardiovascular Electrophysiologyagreed to make the article available for free online for 12 months so anyone can access it, print it, and share it with their healthcare team. The publication of this article encourages positive communication between patients and doctors, and sends healthcare professionals an important message about the impact of communication.