News for Living With Atrial Fibrillation

From the American Heart Association and StopAfib.org

**The blog posts reflect the opinion of the author and do not necessarily reflect the opinions of the AHA**

Most Recent Blog Posts

The subject comes up quite frequently about how to find the best prices for the newer blood thinners (anticoagulants). After posting this info to a thread, I realized that it should be put in a place that is easy to find. That is why I am posting this to the blog so you can find these links more easily, and point others to this. Here are some resources to help: ... Read More
Posted by Mellanie at StopAfib.org on AFib News Blog Feb 18, 2017 11:08 AM CST
This morning, we announced the dates for the 2017  Get in Rhythm. Stay in Rhythm.™ Atrial Fibrillation Patient Conference ! Below is the email that we sent out. Please save the dates on your calendar and plan to be with us at the Fairmont in Dallas for this amazing event.  Mellanie We're SO excited to announce that we have finalized the dates and location ... Read More
Posted by Mellanie at StopAfib.org on AFib News Blog Feb 9, 2017 10:18 AM CST
Good Afternoon! We wanted to introduce you to our new My AFib Experience Community Leaders! We started a community leaders program  to ensure that all members of the community feel welcomed and supported. A few months ago, we had asked you to apply to be a community leader if you are interested. We have selected Jean (Jeanamo)  and Roy (Rbrandt) for this ... Read More
Posted by kristen.wadeAHA_ASA on AFib News Blog Feb 7, 2017 2:30 PM CST
This is a reminder of our Community Policies  and our Terms of Service . I’d like to emphasize two very important points. Avoid Copyright Issues: It is not OK to cut-and-paste or post material for which you do not own the copyright, and we reserve the right to remove anything posted that violates the copyright of another party. If you wish to share ... Read More
Posted by Mellanie at StopAfib.org on AFib News Blog Dec 28, 2016 11:43 AM CST
The holidays are a perfect time to give yourself peace of mind by purchasing an afib monitor, especially with these holiday discounts (US only) that are being provided through StopAfib.org. AfibAlert — a standalone device that doesn't require a smartphone — is available at a  holiday special price of $199 throughout the month of December.   Kardia ... Read More
Posted by Mellanie at StopAfib.org on AFib News Blog Dec 14, 2016 9:46 AM CST
Dear My AFib Experience Community Members,   Thank you to those of you that had already taken this survey. For those of you that had not taken it yet, we need your help. We are conducting an online survey about your experience on our community, My AFib Experience™ . We are looking to gain information from you to help us make our community better and improve ... Read More
Posted by kristen.wadeAHA_ASA on AFib News Blog Dec 13, 2016 2:36 PM CST
Hello, I just wanted to let you know that the navigation of the site has changed slightly. The navigation to all areas of the site can now be found on the black horizontal bar across the top of each page (except for the main AFib Town page). Please let me know if you have any questions or cannot find what you are looking for! Thank you! Kristen Read More
Posted by kristen.wadeAHA_ASA on AFib News Blog Oct 11, 2016 11:15 AM CDT
Hello!   We are excited to announce that we are launching a new Community Leaders Program for My AFib Experience. We plan to select several My AFib Experience members to serve in a volunteer capacity as leaders in the community forum. The role of the community leader is outlined below along with the selection criteria.   Role of the Community Leader: Read ... Read More
Posted by kristen.wadeAHA_ASA on AFib News Blog Oct 7, 2016 10:28 AM CDT
Many of you know that, because I was never stable on warfarin, for genetic reasons (this was before the new blood thinners had been tested and approved), I felt like a stroke walking around waiting to happen when I still had afib. Because of this, and because of some strokes in my family, I feel very passionately about preventing strokes. So, it was a great ... Read More
Posted by Mellanie at StopAfib.org on AFib News Blog Sep 28, 2016 11:18 AM CDT
Hello My AFib Experience community members! We are planning to create videos of an EP responding to common questions from AFib patients about their medications. Here are some of the questions we intend to ask of the EP: If I prefer not to be on medication of any kind because I don’t like the side effects, what will happen if I opt out of medication for AFib? ... Read More
Posted by Mellanie at StopAfib.org on AFib News Blog Sep 4, 2016 5:58 PM CDT
Many of you already know about the Get in Rhythm. Stay in Rhythm.™ Atrial Fibrillation Patient Conference , which is hosted by StopAfib.org. MyAFibExperience.org is a co-sponsor of the conference.  I wanted to alert you to a couple of things that are important if you're interested in attending, or would like to attend but just can't swing it, ... Read More
Posted by Mellanie at StopAfib.org on AFib News Blog Aug 9, 2016 8:57 PM CDT
I previously posted in the forum that we, at StopAfib.org, were working on putting together a webinar with one of the top anticoagulation experts to share what you need to know about avoiding strokes based on the AHA/ACC/HRS Afib Guidelines.   Afib increases your stroke risk by 500%. By knowing your stroke risk and your treatment options, and ... Read More
Posted by Mellanie at StopAfib.org on AFib News Blog Jul 13, 2016 11:48 AM CDT
The results of this study ( http://www.medpagetoday.com/cardiology/arrhythmias/58683 ), from the American College of Cardiology's PINNACLE Registry, are very  concerning. Why would approximately 40% of afib patients who are at risk for a stroke (CHADS2 or CHA2DS2-VASc score greater than or equal to 2) still be getting just aspirin when we know ... Read More
Posted by Mellanie at StopAfib.org on AFib News Blog Jun 26, 2016 12:04 PM CDT
I asked a while back what people do to remind themselves of their medications as I was adding a medication that was twice daily to my normal once daily (bedtime) routine. Most said that they set an alarm on their phone, which I was already doing, but with my crazy-busy life, that just wasn't sufficient. If I was in a meeting, my phone would be on silent and the ... Read More
Posted by Mellanie at StopAfib.org on AFib News Blog Jun 10, 2016 11:27 AM CDT
The ORBIT Study was just published online . Some of the findings were that: About 30% of women with atrial fibrillation were asymptomatic (didn't feel their afib) vs. about 40% of men. Women generally had a worse quality of life (probably because they were more symptomatic). Women tended to have more strokes, but they tended not to be more deadly. ... Read More
Posted by Mellanie at StopAfib.org on AFib News Blog May 20, 2016 8:59 PM CDT
We would like to take this opportunity to remind you of some of the Terms of Use of this site, which can be found at http://myafibexperience.org/terms . Copied below are important parts of our copyright  policies, but the short version is that it is not OK to cut-and-paste or post material for which you do not own the copyright, and we reserve the right to ... Read More
Posted by Mellanie at StopAfib.org on AFib News Blog Mar 26, 2016 12:43 PM CDT
The request below is from Mellanie True Hills of StopAfib.org and is not sanctioned by American Heart Association. However, this research would be conducted by Dr. Patrick Ellinor, who is a volunteer for American Heart Association and is also a member of the Global Medical Advisory Board of StopAfib.org.   If you have atrial fibrillation and are Black ... Read More
Posted by Mellanie at StopAfib.org on AFib News Blog Feb 24, 2016 9:28 PM CST
At the recent Atrial Fibrillation Symposium, held January 14-16, 2016, in Orlando, I gleaned many interesting nuggets of information about stroke risk and blood thinners from the expert’s presentations. While we already knew some of these things, some are totally new information from research studies and from best practices by top experts and ... Read More
Posted by Mellanie at StopAfib.org on AFib News Blog Feb 16, 2016 12:24 PM CST
MyAFibExperience.org will be ringing in the New Year with a live ad in Times Square! Check out the video below and feel free to share it in social media.  Read More
Posted by kristen.wadeAHA_ASA on AFib News Blog Dec 31, 2015 12:02 PM CST
My AFib Experience is being highlighted in Times Square at 1500 Broadway for the holidays! But if you're not in the Big Apple, you can get a sneak peek here.  https://vimeo.com/148926490     Read More
Posted by kristen.wadeAHA_ASA on AFib News Blog Dec 23, 2015 1:12 PM CST
Make time for what matters most. Join our AFib Community! (Atrial Fibrillation)
 

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Recent Comments

Delia,

It will be a while before we know if we will have enough sponsorship to do videos of the conference. We usually do not know until a few weeks beforehand.

Mellanie
We just announced this morning that we have opened registration for the conference, but only for two weeks with a Super Early Bird special price. Here is the message we sent this morning...   
 

This is it!

Registration is officially open for the 2017 Get in Rhythm. Stay in Rhythm.™ Atrial Fibrillation Patient Conference.

You can skip the reading and go to t...

I cannot travel but I would like to pay for a webinar of the Conference in 2017 if you can make it available.Thank you for all your help and guidance, Delia Dumitriu
It might be useful to see the message we sent out on Monday, too, about the conference, so it's posted below. And, if all goes well, we hope to make an announcement of a limited-time special registration price next week. (Keep in mind that what we ask for conference registration covers just a very tiny fraction of what it costs us to put on the conference; we re...
Hi everyone, my name is Roy and I am very honored to have been chosen as a community leader.  In a lot of the recent posts where Jean and I both respond we quite often say ditto to what the other has already posted and once again Jean has beaten me to the punch so I have to say 'dito' again in regards to what I see my role as community leader as. I will add one thing, I jus...